Hi friends. I’ll be sending a longer update in the next couple of months but wanted to let you know that the stellate ganglion block appears to have been the most effective treatment yet. Camille is on an upward trajectory and we are so grateful! She no longer wears her ear muffs. She walked to the driveway…twice! I hear her singing sometimes. She can use her phone a small amount and engage more w/ her voice assistant to send texts, etc. She has eaten dinner at the table multiple times. And more. These are HUGE steps and we praise God for them.
Thank you to everyone who has reached out, visited, etc. It means so much.
Ways you can help:
visit Camille. or if you can’t visit in person, send texts, voice notes, videos, or snail mail
sign this form to advocate for integrating ME/CFS into medical education: https://tinyurl.com/StateMedicalBoardForm
And here’s a video of her walking to the driveway.
